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July 6, 2015 · 1 Comment

#CureBatten: Celebrities rally to help find a cure for Batten disease.

On June 9th, Hollywood’s biggest stars took to social media to show their support for producer Gordon Gray and his fight to find a cure for Batten disease. Batten disease is a rare brain disorder suffered by so few that research to find a cure has been minimal, and tragically, both of the producer’s two daughters – Charlotte, 4, and Gwenyth, 20 months, – were diagnosed with the rare terminal illness.

The girls’ mom Kristen Gray says, “The geneticist told us there was limited data out there, but that this was a neurodegenerative brain disease that would leave our daughter blind, immobile, cognitively impaired and eventually dead between the ages of 6 and 12. There are very few families in the world with this, and most specialists know very little about this disease. Our world was shattered.”


Gray Foundation from Anaconda Street Productions on Vimeo.
Gordon Gray has produced some of the best sports films in the last decade, such as Miracle, Invincible, The Game Plan, Secretariat, Million Dollar Arm, and most recently, McFarland, USA. During a recent interview about his daughters’ diagnosis, Gordon said,

I was in shock from the moment I got the news, and I felt like if I kept moving and digging and fighting, I wouldn’t lose my mind. [A doctor] said, “I have something here that I believe will be a cure, but there”s no funding for it right now. Nothing. You would have to personally fund the research, the trials, everything, including the surgery.”

Jessica-Alba-Twitter

Celebrities took to social media to #curebatten

The Grays created The Charlotte and Gwenyth Gray Foundation in order to raise the 10 million dollars needed to fund the research and experimental treatments. The foundation partnered with IfOnly.com, (an online marketplace that donates a portion of its sales to charities, to offer once-in-a-lifetime experiences) and challenged everyone to give $1 to “The Charlotte and Gwenyth Gray Foundation to Cure Batten Disease” in the hopes of raising both awareness of the disease and 10 million dollars in funds for research and experimental treatments.

On June 9th the internet was a-buzz with the #curebatten hashtag and celebrities such as Gwyneth Paltrow, Mark Wahlberg, Channing Tatum, Jennifer Lawrence, Jeremy Renner,Jennifer Garner, Kate Walsh, Jessica Biel, Jessica Alba, and Dwayne Johnson and have all shown their support for the cause.

CureBatten Don Diamont and Cindy Ambuehl

My husband Don Diamont and I attended the Tea For Two #curebatten fundraiser

My husband Don Diamont and I both recently attended a fundraiser for these beautiful girls. A Tea for Two party was held at the Brentwood home of Tracy Maltas and was hosted by Ali Larter, Sasha Alexander and Angie Harmon.
Cure Batten Fundraiser
The lovely garden party was quite emotional, with all who attended saddened by the girls’ plight but hopeful there is a cure to be found. To learn more about the milestone goals and how your donation can be used to help save Charlotte and Gwyneth Gray, please read more about the project here and please do what you can to help, either with a monetary donation or by sharing the girls’ story.
Or both.

#curebatten

#curebatten

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Comments

  1. Tracy Tutor Maltas says

    July 7, 2015 at 2:16 pm

    Cindy, Thank you for help bringing awareness to this disease. I appreciate your support and the family is so grateful to have you on their side. Let’s #curebatten together!!

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About Cindy

In 2017, luxury real estate agent Cindy Ambuehl was ranked 20th in California and 40th in the nation in the WSJ/Real Trends' The Thousand, closing almost $160 Million in real estate deals. Specializing in residential sales on the Westside, this Southern California native has proudly built a reputation for her unrelenting work ethic, integrity, honesty, and thorough knowledge of the marketplace.

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Cindy Ambuehl

Partner, The Agency

11777 San Vicente Blvd, Suite 850
Los Angeles, CA 90049

424.321.4947 (office)

cindy@theagencyre.com

CalBRE#: 01821934

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